Ethics of research engagement with Deaf people. A qualitative evidence synthesis

We kindly recommend to you a new paper published by the Department of Philosophy and Bioethics’ members entitled: Ethics of research engagement with Deaf people. A qualitative evidence synthesis: https://doi.org/10.1093/jdsade/enae024

Preprint is available at the UJ CM Bibliography page: https://doi.org/10.60731/ujcm.20062401

Polish Sign Language & plain Polish summaries available here: >>> 

Abstract:

In this article, we explore ethical issues of Deaf people’s engagement in research. To focus on the perspectives of Deaf people, we investigated existing qualitative and mixed methods research within a qualitative evidence synthesis. Our synthesis is based on a systematic database search (Scopus, PubMed) and reference check of included papers which resulted in 27 eligible papers. We analyzed the data using thematic synthesis and developed 5 analytical themes. The results present research as a struggle for Deaf people and emphasize the need for changes regarding recognition of Deaf research in a cross-cultural context, maintaining equal and partner relations, and provision of accessible communication. Our research contributes to understanding what the ethical inclusion of Deaf people in research implies. It may also support the development of evidence-based normative recommendations and scientific cooperation between Deaf and hearing people.


 

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